October 2016

Resources for Parkinson's disease and Parkinson's Related Dementias


Associations/Institutes

National Parkinson's Foundation (NPF)

Phone: 1-800-473-4636
www.parkinson.org
Free, downloadable brochures, pamphlets and other publications.
Online webinars
Resource and referral assistance

National Parkinson's Foundation - Minnesota

Phone: 763-545-1272
www.parkinsonmn.org
Serves MN, ND, SD residents
Resource and referral assistance
CareMap Program
Respite Care, Exercise and Help at Home grants available with application process.

Parkinson's Disease Foundation (PDF) 

Phone:  (800) 457-6676
www.pdf.org

Alzheimer’s Association Minnesota Dakota Chapter

Local Phone:  701-277-9757
24-hour hotline: 1-800-272-3900
www.alz.org/mnnd
Serve all dementia diagnoses


Home Services - non-nursing

Local agencies can provide personal care, respite care, housekeeping, grocery shopping, transportation, companionship, medication reminders, errands/delivery service, eating-in meals. A resource list is available upon request. 

 

Cass County Social Services: Home and Community Based Services or Waiver Programs for lower income to assist with the payment of services in the home.
Phone:  701-241-5747

Clay County Social Services: Home and Community Based Services or Waiver Programs for lower income to assist with the payment of services in the home.
Phone:  218-299-5200


Medication Assistance

Home Health Agencies: provide medication set up and monitoring for a flat fee or can bill ND or MN Medicaid.
A resource list is available upon request from a Sanford social worker or case manager.

Fargo/Cass Public:  provides medication set up and monitoring for a fee based on a sliding scale (income based) or can bill ND Medicaid for services.
Phone:  701-241-1360


Respite Care

Southeast Human Service Center (Fargo Residents)

701-298-4420

Lutheran Social Services (Moorhead Residents) 

  Tara Giese:  218-233-7521

National Parkinson's Foundation - Minnesota

Phone:  763-545-1272
www.parkinsonmn.org

Serves MN, ND, SD residents.
Respite care grants available with application.

Fargo V.A. 

Phone: 701-232-3241 ext. 3786
30 days per year and home respite options for veterans who qualify

Alzheimer's and Dementia Care Grant Program

Home Instead and Hilarity for Charity Partnership Program
            Eligibility Criteria: (
Apply on-line at www.helpforalzheimersfamilies.com)
                       1. Currently living at home with Alzheimer’s disease or related Dementia.
                       2. Caregiver(s) is facing financial and emotional hardships due to the unique challenges of Alzheimer’s or related                              Dementia.


Adult Day Care

Arbor Park Village:  218-359-9999
Bethany:  701-239-3000
Kind-er Care:  701-281-3016
Lutheran Social Services Morning Out
Mondays 10:00 a.m. – 2:00 p.m.
Tara Giese:  218-233-7521
Maple View Memory Care:  701-478-8655
Rosewood:  701-277-7999
Villa Maria:  701-293-7750


Education, Support Groups, Support Forums and Skills Building

Midwest Parkinson's Initiative

Educational Classes (Parkinson’s topics and Caregiver Support)
Partnerships with local care facilities
Support and Resource Information
Phone:  701-478-5800

Heart Springs Parkinson's Disease Group and Young Onset Parkinson's Disease Group

Phone:  701-261-3142

Edgewood Vista and Village Parkinson's Support Group

Phone:  701-365-8200

LSS of MN Caregiver Discussion Group

Phone:  218-233-7521

Veteran's Administration Caregiver Support Group 

Phone:  800-410-9723 ext. 3786

Alzheimer's Association Support Group

Locations: Touchmark and First Assembly of God
Phone: 701-234-5570 or 877-234-4240

Sanford Health Better Choices Better Health Program

Offered in both face-to-face and online workshops.
Teaches skills people need to manage chronic conditions.
Pre-registration required.
Phone 701-234-5570 or 877-234-4240

Endings and Beginnings (Bethany)

Seven week support and education program for family members of nursing home residents with dementia
Phone: 701-239-3529

Sanford Family Wellness Center

Parkinson’s Exercise is designed by Sanford Health trainers to meet specific medical needs.   Phone:  701-234-6961
Silver Sneakers Senior Fitness
Phone:  701-234-2400http://www.familywellnessfargo.org/programs/824/wellness-wednesday/

PatientsLikeMe

Online resource to connect people with others who are dealing with similar situations to share, support and learn from each other.
www.patientslikeme.com


Care Enhancement, Education and Support for Dementia

Care Consultations - Alzheimer's Association

Needs assessment, care planning, resource information, referrals, problem solving, support and care tips
Phone:  701-277-9757

Dignity Care

“Enhancing the quality of life for people with dementia and their caregivers through creative, highly personalized care-giving strategies.”
Geriatric care management provided by an experienced nurse. Fees apply.
Phone:  218-790-1218
www.dignitycare.org


Help for those who wander

Medic Alert Safe Return - Alzheimer's Association

Assistance when a person wanders or is lost
Access to vital medical information in the time of need
1-888-572-8566 to enroll


Assistive Technology and Medical/Adaptive Equipment

Interagency Program for Assistive Technology (IPAT) 

Serves ND and will consider Moorhead residents
Assistive technology devices and services to solve everyday problems for people with memory loss and disabilities.
Phone:  (701) 365-4728
http://ndipat.org/

Minnesota STAR Program

Serves MN residents
Helps Minnesotans with disabilities gain access to and acquire the assistive technology they need to live, learn, work and play.
Phone:  1-888-234-1267
www.mn.gov/star

HERO (Health Equipment Recycling Organization) 

Collects, sorts and re-distributes donated medical equipment and supplies.
Phone:  701-212-1921 or Toll Free: 888-524-2827
www.herofargo.org

The Melvin Weinstein Parkinson's Foundation

Purchases equipment and supplies for Parkinson’s patients with application process.
Phone:  757-313-9729
www.mwpf.org